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Twin-to-Twin
Transfusion Syndrome
When Two or More Babies
Share a Placenta
Share a Placenta
By Alexandria Powell
It was an information packet from the Twin-to-Twin Transfusion Syndrome Foundation that gave the Sommers the information they needed to find a specialist that could help them. Within days, they were on their way to see
one of the world's top TTTS experts, and a decision was made to perform laser surgery. Both girls survived, and today are thriving 3-year-olds.
"The first thing families want to know is, 'What can we do?'" Sommers says. "I think that what is helpful to them is, first and foremost, to seek out resources that can help them, such as the Fetal Hope Foundation and the Twin to Twin Transfusion Syndrome Foundation. That's the first thing: being able to speak with somebody that's been through it, and can kind of help them along, help them understand their particular case better."
The next issue families struggle with is coming up with a plan of action. Because there are different viewpoints on how to treat TTTS, families usually need to talk with at least a few experts to help them make decisions on care. "We try to help them get in touch with experts quickly, and try to help them understand things from a less clinical standpoint," Sommers says.
If Sommers could say one thing to families put in the same situation as he and his wife were three years ago, what would it be? "I want them to know there is hope," Sommers says. "There have been so many advances in treatment, so while unfortunately not every situation ends up with a happy ending, there are things that can be done. There is hope."
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